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When we think of children, we normally picture cheerful, lively youngsters running around aimlessly. Children with congenital heart disease, however, are frequently ill, and even with a little exercise could easily tire them out. Many of them, too, are living day by day in the face of uncertain futures. Thus, as we take every opportunity to help these children, we consider every grin to be just as precious. Here are some of the brave tales of our little heroes.

Aisya Ainul Qolbi

7 years old

Get inspired by adorable little Aisyah’s journey from being the first child to receive heart surgery in 2010 to her dreams of becoming a teacher.

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Che Ku Ammar Zaqwan

6 years old

Get your heart tugged over the touching story of Che Ku Ammar Zakwan and his brave battle with congenital heart disease.

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Min Myat Hein

14 Months Old

Read about our brave little angel from Singapore, Min, and an inspiring journey facing congenital heart disease.

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Ramadhani Binti Muhammad Firdaus

9 Months old

Ramadhani was born small and didn’t gain much weight. She slept a lot, and we thought she was just calm, but she was actually tired because her heart was working too hard. Her breathing was
fast, but we didn’t realize it was a sign.

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Wan Nur Adrea Miqayla Binti Wan Mazri

2 years old

During my pregnancy, everything was normal, and my daughter was born healthy. However, on the third day after her birth, my husband and I were informed that she had a heart problem. Since birth, she had been admitted to the NICU due to sepsis. Initially, we were told that she had one large hole in her heart, but we would need to wait for an appointment at the government hospital for a more thorough examination. 

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Ahmad Mirza Muhaimin Mohammad Shafiq

11 Years Old

My son has Tetralogy of Fallot with absent pulmonary valve syndrome. His first surgery was performed at IJN when he was 10 months old. However, the doctors explained that the artificial valve would need to be replaced as he grows.

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Aisya Zara Binti Mohamad Akhir Fakhrullah

11 Months old

She has been diagnosed with multiple heart issues, including TGA, DORV, and VSD. We cannot fully describe her condition yet because we don’t know exactly what is happening until the doctors explain it to us.

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Kalki A/P Gunasegaran

3 Months old

She has been diagnosed with multiple heart issues, including TGA, DORV, and VSD. We cannot fully describe her condition yet because we don’t know exactly what is happening until the doctors explain it to us.

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Rasool bin Kadir Maidin

12 Years Old

My son was diagnosed with a hole in his heart and a narrowed heart valve.

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Nur Medina Asyifa Binti Mohamad Fauzi

5 Years old

Before the surgery, my daughter’s condition was very worrying. When her oxygen levels were around 75% or lower, her lips and nails would turn blue due to a lack of oxygen. 

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Nur Raisha Zulfa Binti Muhammad Ridhwan

5 Years old

Before the TOF correction surgery, Raisha’s oxygen range were between 75-85%. When she walked or played, she would get tired quickly, and her skin would turn blue. She also had a poor appetite

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Wan Rais Rafiqi Bin Wan Mohd Khairul Khairi

3 Years Old

Before the surgery, our child would get tired very easily. His lips and nails were blue.

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Yoganayakii A/P Gengeswaran

12 Years old

Before the surgery, my child was less active, often felt tired, frequently experienced headaches, and had slow breathing. 

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Zahian Alee Mikhail bin Mohammad Sabri

7 Years old

My son was less active and often experienced bluish discoloration. He could not walk more than 20 steps as he became easily tired, and his breathing was fast. In addition, he had a poor appetite and experienced difficulty with breastfeeding. 

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Zayn Arsh A/L Theva Sharma

1 Years Old

Since the surgeryhe has been healthy and no longer experiences any breathing problems or blue-black discoloration.

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